Join us in the fight against HIV and AIDS: Donate to The Well Project.
We need your help to build a new online community. A community of women
sharing health information and life experience in a safe and supportive
environment. A community, whose collective voice can be expressed through The
Well Project, empowered by the voices of many and enriched by the spectrum of
experiences we represent. In an effort to develop a better global
understanding about HIV disease and its effects on the population of women
worldwide, we will use this website as a forum for conversation and a tool to
collect the wisdom and information our users are willing to share with us. The
more you share, the more effective we can be.
We realize that asking you to share Personal Information is asking a lot. In
our online information practices and the choices you can make about the way
your information may be collected and used. We promise to protect information
that personally identifies you (“Personal Information”) with the same vigor we
would employ to protect our own. We are a company conceived, developed, and
managed by HIV+ women and those who have spent their lives and careers caring
for them. We understand how important your privacy is. To make the Privacy
Policy easy to find, we make a link to it available on our homepage.
The Well Project is the sole owner of the information collected on
www.thewellproject.org. We collect information from our users at several
different points on our website as described below. The Well Project does not
share, sell, rent, or trade Personal Information with third parties for
You may use much of The Well Project website without registering or
submitting any Personal Information. In that case, the only information we
(see details below).
We currently offer registration to our mailing list which provides you with
access to periodic e-newsletters, surveys or other updates we believe important
to our subscribers. This information is stored securely in our user profile
You can always opt-out of receiving such e-mails or unsubscribe to
newsletters by clicking the "unsubscribe" link found at the bottom of
each newsletter or correspondence.
When you register to join The Well Project mailing list, you will be
directed to a page that requests that you share information about yourself and
your occupation.This information is critical to our mission and we hope that
by demonstrating our commitment to your privacy, security, and anonymity, you
will feel secure and willing to share this information about yourself. This
information is entirely optional and will not in any way limit your ability to
utilize the site or any of its features whatsoever. This optional personal
information will be stored in our user profile database. You will also be able
to change or update this personal information at any time by clicking the
appropriate links at the bottom of each e-newsletter or e-mail from The Well
By sharing your personal information, we have the best opportunity to learn
about our community of women living with HIV disease and begin to understand
how we might influence the development of education programs and research
initiatives to improve the lives of all women living with HIV and AIDS. We ask
you to share as much information as you possibly can to help us all achieve our
Your information is secure and encrypted and will never be shared with any
third party in association with any means to personally identify you unless you
expressly request The Well Project do so in order to involve you in an offline
initiative you elect to participate in.
What are Cookies?
A cookie is a piece of data stored on the user’s computer tied to
information about the user. We use both session ID cookies and persistent
cookies. For the session ID cookie, once users close the browser, the cookie
simply terminates. A persistent cookie is a small text file stored on the
user’s hard drive for an extended period of time. Persistent cookies can be
removed by following Internet browser help file directions.
Every computer is assigned a different cookie by The Well Project. The
information collected by cookies helps us to statistically monitor usage
patterns on our site and selected partners' sites. We may use cookie
information to target certain information to your browser or to determine the
popularity of certain content. However, cookies are not tied to your
personally identifiable information.
Your browser software can be set to reject all cookies. Most browsers offer
instructions on how to reset the browser to reject cookies in the
"Help" section of the toolbar. If you reject our cookie, certain
functions and conveniences of our site may not work the way they were intended
but you do not have to accept our cookie in order to productively use our site.
If you accept our cookie, we will link your user id to site usage patterns.
E-mail A Friend
When you use The Well Project's "E-mail a Friend" application, The
Well Project e-mails the article or other content you designate to your
friend's e-mail address and lists what you supply as your e-mail address as the
sender. The Well Project uses the friend's e-mail address only for the purpose
of sending your friend the e-mail you requested and for no other purpose.
Personally identifiable information collected by The Well Project through
the online donation process is voluntary information. We ask you to provide us
with your name and e-mail address. We will also give you the opportunity
to make your donation ‘in honor of’ or ‘in memory of’ an individual or group.
If you choose to provide this information it will be stored in our database and
used only for the purposes of (a) sending you an electronic receipt for your
donation, and (b) listing your name on our web page titled “Supporters of The
Well Project.” Please note you may choose to be listed by your name or as an
When you make an online donation to The Well Project additional personally
identifiable information is collected by the third party vendor PayPal. The
Well Project does not have access to the credit card or bank account
information you enter on the PayPal web site. The Well Project contracts with
PayPal because we believe PayPal to be a trusted, reliable, secure source for
how PayPal uses and stores your personally identifiable information. When you
make an online donation to The Well Project via PayPal, PayPal will notify The
Well Project of your donation and provide us with your e-mail address. We will
only use this e-mail address to send you an electronic receipt for your
We do not share your personal profile information with other third parties.
However, collective trends including your profile will be shared in aggregate
form, allowing The Well Project to analyze data from our user population to
generate research and program agendas to better serve our users. By sharing
your personal information and experiences, you contribute to the collection of
valuable data about women living with HIV disease. It is our fundamental
belief that by sharing the collective voices of women living with HIV disease
as well as the people who care for us, we can influence how the millions of
dollars invested every year into treatment research, clinical trials, and
education are spent. By becoming the most comprehensive and reliable resource
for information about women with HIV and AIDS we also ensure our
sustainability in the market so that we may continue to provide the education
and community resources that serve our core mission: to improve the lives of
women living with HIV and AIDS and those who care for them.
What is Aggregate Information?
The Well Project may provide to third parties non-personal information about
you that does not allow you to be identified or contacted and that is combined
with the non-personal information of other users. This is what we describe as
Aggregate Information. For example, we will produce reports for third parties
regarding the number of users of our site and the activities they conduct
while on our site. We might also inform a pharmaceutical company (that may or
may not be partner on our site) that "25 percent of our users are women below
the age of 25 or that 76 percent of our users are women infected with HIV." We
may charge third parties for this Aggregate Information as a primary funding
mechanism of our business plan.
Information Collected and/or Stored in My Well
All information that is received, used, or disclosed in connection with “My
Well” is encrypted. This means that when the information is transmitted over
the telephone or other communication wires, it is transmitted as a series of
symbols and characters that are not readable by normal circumstances but which
are later de-scrambled by a computer system that allows you to read the
information and us to store the information within the safe confines of our
respective computer environments.
The Well Project collects the Personal Information you voluntarily store in My
Well. The Well Project does not use the Personal Information stored in My Well
for any purpose except to provide members with a readily accessible,
easy-to-update means of collecting and storing information, articles, slides,
and data sets that are of particular interest to you. The only entities that
will have access to My Well are The Well Project itself and any third parties
hired by The Well Project to assist us in operating, maintaining, and
improving the site. These third parties are required by us to hold your
information in the strictest of confidence and may not use or disclose it
except to fulfill the service we hired them to perform. The Well Project will
not share any of the information that is stored in My Well with any other
third parties without your express permission.
The Well Project will not disclose any Personal Information it gathers from
requested in writing by you. We may release Personal Information to third
parties to comply with valid legal requirements such as a law, regulation,
search warrant, subpoena or court order; or in special cases, such as a
physical threat to you or others. In the event that we are legally compelled to
disclose your Personal Information to a third party, we will notify you unless
doing so would violate the law or court order.
Disclosure to The Well Project Third Party Contractors
The Well Project employs third party contractors who sometimes have limited
access to your Personal Information in the course of providing products or
services to The Well Project. These contractors include technology specialists
and analysts that provide us with services, and/or analysis related to
improving the operation and managing the maintenance of our Website. These
contractors also may have access to your e-mail address to send newsletters to
you on our behalf or to send e-mails to you for purposes such as
conducting market research on our behalf.
Access to your Personal Information by these contractors is limited to the
information the contractor will require to perform this limited function for
The Well Project. The Well Project requires that all third party contractors
who have access to such Personal Information sign a contract agreeing to
protect the privacy of your Personal Information under the guidelines of this
purpose other than providing us with the services for which we have contracted
Disclosure to Linked Sites
For your convenience we provide links to websites operated by companies
other than The Well Project ("Third Party Websites"). These links may
be referenced within content, or placed beside the names or logos of sponsors.
The Well Project does not disclose your Personal Information to these Third
Party Websites without first obtaining your consent. The Well Project does not
endorse and is not responsible for the privacy practices of these sites. If you
choose to link to one of these Third party Websites, you should review the
Website collects and uses your Personal Information and to decide whether or
When you join the mailing list for The Well Project, you are indicating your
consent to permit The Well Project to store your username (e-mail address) and
any other additional information you provide in our database.
We provide a regular e-mail Newsletter that will inform you of new content
on our site and special programs available through the web or otherwise, that
may be of interest to you.
The Well Project will contact you periodically (approximately once a
month) when we have provided significantly new or different functionality
to our Web site, so that you are aware of the new services and can decide
whether to take advantage of them.
We will contact you in response to any inquiry you make to our support or
service staff in regards to any question, suggestion, or comment you may have
about this policy or about the site in general. Please use one of the e-mail
addresses listed in our Contact Us section to submit any questions,
suggestions, or concerns you may have.
Occasionally, we will e-mail you surveys or questionnaires to request
feedback that can be used to enhance our site to better serve your needs.
On rare occasions it is necessary to send out a strictly service related
announcement. For instance, if our service is temporarily suspended for
maintenance, we might send users an e-mail. Generally, users may not
opt-out of these communications, though they can deactivate their account in
order to stop these communications. However, these communications are not
promotional in nature.
provides an appropriate level of protection for your Personal Information.
current with industry standards and to ensure it complies with the practices
we employ on our site. We will post the date of the most recent revisions on
substantial or significant changes to this policy which would materially
affect your rights as described herein. Please check this page from time to
Please keep in mind that your use of our website means that you accept our
any substantial or materially significant changes which will otherwise be
treated according to this policy.
Policy Relating to Advertising, Children, Public Forums, and E-mail Communication
The Well Project does not host or receive funding from advertising.
We are committed to protecting the privacy of children. This website is not
designed or intended to attract children under the age of 13. We do not
knowingly or purposefully collect Personal Information from any person under
the age of 13.
The Well Project on Facebook or Twitter (or participate in discussions on these
websites). The Well Project offers discussion boards on Facebook where users
with similar topics for discussion can share information and support one
another or where users can post questions for experts to answer. You should be
aware that any information shared in a discussion thread, chat room, bulletin
board, or other online dialog is public information and may be seen, disclosed
Please think carefully before disclosing any personal information in any public
E-mails to The Well Project
ideas, concepts or inventions to The Well Project by e-mail to the various The
Well Project departments listed on the "Contact Us" link on our
Website. If you want to keep business information, ideas, concepts or
inventions private or proprietary, do not send them in an e-mail to The Well
Project. We try to answer every e-mail in a timely manner, but are not always
able to do so.
How The Well Project Handles Privacy and Security Internally
We take every precaution to protect your Personal Information. When you
provide us with Personal Information, it is protected both online and
User Name and Password
The first line of protection is your encrypted password, selected by you,
which along with your user-id forms the basis for authentication to the site.
Your user name, which is based on your e-mail address is unique to you, and is
only effective for protected site access in combination with your password. No
one can access any of the secure areas of our site without a proper user name
and password combination.
To minimize the chance that someone can guess your password, we require
passwords of at least 6 characters with at least one letter and at least one
number. If a user of our site enters an invalid password a certain number of
times, that user will be blocked from entering the site for a period of time
Since Personal Information will only be displayed or entered in a secure
area, the combination of the unique user id and the non-trivial password
provides considerable protection.
In addition to the password protection, any personal information you provide
is encrypted (using 128-bit encryption) and must be accessed using the SSL
(Secure Socket Layer) encryption standard. You can tell that you are on a
secure, encrypted page while browsing our site by looking at the lock icon on
the bottom of Web browsers such as Netscape Navigator and Microsoft Internet
Explorer. If the page is secure, the lock is closed; when the page is
unencrypted (as it is during standard surfing), the lock becomes un-locked.
To protect against hackers entering our server environment, we have put in
place appropriate firewalls. Data contained on our servers is visible only to
proprietary middleware applications. Log-in passwords are required by internal
staff and are changed on a periodic basis. All internal activity is logged.
While we use SSL encryption to protect Personal Information online, we also
work very hard to protect Personal Information off-line. Any information we
receive, whether defined as Personal Information or not, is restricted in our
offices. Only employees who need the information to perform a specific job (for
example, our database administrators) are granted access to your Personal
Information. ALL of our employees are kept up-to-date on our security and
privacy practices. Every quarter, as well as any time new policies are added;
our employees are notified and/or reminded about the importance we place on
privacy, and what they can do to ensure our users' information is
Government Subpoenas, Warrants or Orders
We reserve the right to disclose your personally identifiable information as
required by law and when we believe that disclosure is necessary to protect our
rights and/or comply with a judicial proceeding, court order, or legal process
served on our Web site.
We also protect and secure the physical environment in which data is stored.
We store Personal Information on servers kept in a secure environment, within
locked, environmentally controlled server rooms.
On the “The Well Project” web site, you can sign up for receiving recurring
informational newsletters and surveys or other communication via e-mail from
The Well Project and/or directly from third parties.
You can unsubscribe from the newsletters at any time by simply clicking on
the "unsubscribe" link at the bottom of any e-mail newsletter. An
e-mail to our automated unsubscribe service will be created on your machine.
Click the "send" button. You will then be unsubscribed from that
newsletter within two to three business days. If you are experiencing
difficulties with our automated unsubscribe service, you can e-mail us at firstname.lastname@example.org.
The Well Project Customer Service will unsubscribe you from that newsletter in
two to three business days.
Statement Regarding HIPAA Compliance
The Health Insurance Portability and Accountability Act ("HIPAA")
controls the collection, use, and distribution of individually identifiable
health information by certain health care providers, called "covered
entities" under the statute.
The Well Project is not a covered entity as that term is defined under
HIPAA. As a result, and because you (instead of a third party) have willingly
and knowingly provided the information we collect, HIPAA does not apply to our
Updating Your Personal Information and Contacting The Well Project
You can always contact us in order to delete your Personal Information from
our systems, update the Personal Information that you have provided to us, and
change your preferences by e-mailing us at email@example.com. Such
changes will not have any effect on other information that The Well Project
maintains. If you have a complaint or problem you may e-mail us at firstname.lastname@example.org
and the customer service department will forward your complaint to the
appropriate internal The Well Project department for a response or resolution.
We try to answer every e-mail in a timely manner but are not always able to do
so. If you do not receive adequate resolution of a privacy related problem, you
may write to The Well Project's Privacy Help Desk at:
The Well Project
P.O. Box 768
Nellysford, VA 22958
Or call (888) 616-WELL
You should be aware that it is not technologically possible to remove each
and every record of the information you have provided to The Well Project from
our servers. The need to back-up our systems to protect information from
inadvertent loss means that a copy of your Personal Information may exist in a
non-erasable form that will be difficult or impossible for us to locate.
Nevertheless, we promise that upon receiving your request, all Personal
Information stored in the databases we actively use for research and daily
business activities, and other readily searchable media, will be deleted.
Information provided on this website is for educational purposes only. It is designed to support, not replace, personal medical care and should never be used as a substitute for personal medical attention, diagnosis, or hands-on treatment. We recommend all medical decisions be made in consultation with your personal health care provider.