The Well Project is a Not For Profit Corporation developed by and for women living with HIV, their health care providers and caregivers. Our website provides valuable resources and information in English and Spanish on the basics of HIV/AIDS, its treatment, women-specific issues and much more.
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Clinical Research Links

The Well Project has organized a list of online resources to make it easier for you to search for current and ongoing research on HIV and women. Be sure to read the descriptions beneath each link as they provide detailed information about each respective Web site and offer suggestions on how to search for meaningful results. Remember that when you click on a link you are leaving The Well Project site. We do not have oversight of the information provided, but we do believe these sites to be reliable and valuable.




Databases and Search Engines

ClinicalTrials.Gov

ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals.

 

ACRIA

Since 1991, the Community Research Initiative on AIDS's (CRIA) Drug Trials program has partnered with prominent researchers, physicians, and community-based clinics across the U.S. in pursuit of the newest and most promising therapies and treatments for HIV and related illnesses.  More than a dozen of the drugs tested through CRIA have received FDA approval, and we have undertaken groundbreaking independent research in the areas of antiretroviral side effects management.  Through our efforts, people living with HIV and AIDS are receiving the newest and best treatments for thrush, lipodystrophy, treatment-related diarrhea, and a host of other ailments, living longer and healthier lives.

 

Sandbar Digital Library

The Sandbar Digital Library is a federally funded research project that combined the findings from 114 qualitative studies, in which women were interviewed about different aspects of being an HIV-positive woman. The 2 main subjects women talked about in these studies were motherhood and stigma. The digital library provides summaries of these studies, and is intended to be useful for HIV-positive women, clinicians, and researchers.


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Clinical Trial Networks

HPTN

The HIV Prevention Trials Network (HPTN), a worldwide collaborative clinical trials network, develops and tests the safety and efficacy of primarily non-vaccine interventions designed to prevent the transmission of HIV. HPTN research studies emerge from the six scientific working groups and are developed by protocol teams that include HPTU (HIV Prevention Trials Units) investigators and recognized experts in HIV prevention. As study protocols are developed they undergo a rigorous intra- and extra-network review process that ensures compliance with current ethical guidelines and regulatory procedures.

 

IMPAACT

The International Maternal Pediatric Adolescent AIDS Clinical Trials (IMPAACT) group is a new Leadership Group representing a merger of investigators from the Pediatric AIDS Clinical Trials Group (PACTG) and the Perinatal Scientific Working Group of the HIV Prevention Trials Network (HPTN/HIVNET). The mission of the IMPAACT group, which is worldwide in scope, is to significantly decrease the mortality and morbidity associated with HIV disease in pregnant women, children, and adolescents. An Excel spreadsheet of all on-going (transition) and Proposed IMPAACT research trials, including information about enrollments and anticipated opening dates, can be accessed from the IMPAACT Web site.

 

AACTG

The Adult AIDS Clinical Trials Group (AACTG), the largest HIV clinical trials organization in the world, is a network of 38 university-based research sites. The goal of the AACTG is to assist in defining the standards of care of HIV-infected persons. Search this interface by Trial Category.

 

Women's Interagency HIV Study (WIHS)

The Women's Interagency HIV Study (WIHS) was established in August of 1993 to investigate the impact of HIV infection on women in the U.S. The core portion of the study includes a detailed and structured interview, physical and gynecologic examinations, and laboratory testing. The WIHS participants are also asked to enroll in various sub-studies, such as cardiovascular, metabolic, physical functioning, and neurocognition. New proposals for WIHS sub-studies are submitted for approval by various scientific investigators from around the world. For more information on the WIHS cohort, please click here.

 

CPCRA

Community Programs for Clinical Research on AIDS (CPCRA) is a clinical trials group that conducts research through a national network of community-based clinical units. CPCRA strives to reach underserved populations by conducting trials in primary care settings. CPCRA’s trials focus on the day to day medical management of HIV disease. The Web site provides a detailed list of publications and presentations.

 

CFAR

There are twenty-one Centers for AIDS Research (CFAR). This link provides contact information for directors & administrators and a link to individual center’s Web sites if available. 


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Journal Search Engines

PubMed

PubMed includes Medline and OldMedline, which collectively represent 14 million journal citations in the field of medicine and allied health sciences dating back to 1950. Provides a summary of journal articles, citations, and when available, a link to full-text Web sites.

 

Medical Advocates

Showcases journals, papers, and abstracts on various HIV-related topics. ‘New & Noteworthy’ section lists recently published journal articles in several categories, including: Disease Management Update, Drug Update, Diagnostic Update, Marginalized Update, US Health Update, Global Update, and Week In Review (most frequently accessed reports during the previous week).


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Information provided on this website is for educational purposes only. It is designed to support, not replace, personal medical care and should never be used as a substitute for personal medical attention, diagnosis, or hands-on treatment. We recommend all medical decisions be made in consultation with your personal health care provider.