Any other women over 40?

bjtacy's picture


Hi, this is my first forum post!  I currently also participate in another HIV forum on aidsmeds, but am thrilled to have found a community of other HIV+ women.

My name is Betty.  I tested poz over 20 years ago.  I went through wasting, got down to 80 lbs (am 5'9"), been on life support 3 times, coma once etc. etc. 

Now I find myself facing issues that some older women face such as osteoporosis.  I just broke my hip a month ago, had a rod, plate, and screw put in.  Went to my one-month post-surgiery appointment today and had an x-ray.  It showed the my bones are so osteoporotic that it is not healing the best.  My doc says this is caused by long-term HIV infection. 

Going through some things older women go through, I mean older than me!  Though I am going to be 49 this year.  But I've seemed to developed some things I shouldn't have at this age.  Is there any other HIV+ aging women on this website? And if yes, do you face aging issues?


megmeyer's picture

Hi Betty,

I recently tirned 52, been positive for 16-17 years but only diagnosed last May when I had PCP. I have not had any particular aging issues that I know of, maybe early menopause if I compare to my older sister who is just entering. But things are all quite new to me. I had previously (prior to last May) believed my self to be rather invincible health wise but now blood tests and HIV meds would say, not so much. Still trying to sort out what is simply aging and what maybe HIV/AIDS related.

Sorry to hear about your bone issues, one thing I do have is very dense bones. Spent years as a competitive runner which ruined my joints but apparently was good for bone density.


Valeriel's picture

Just found this site.  Been all over the web since I received my first PC in 1999. I consider myself a long-term survivor, 20+ years with aids diagnosis.  I am also co-infected but recently completed a clinical trial with these new drugs just coming on the forefront. I cleared the hep c virus at week #2 and am in the once a month follow up. Once I reach 48 weeks undetctable I am considered cured.  New drugs, no side effects, high cure rates!

I urge anyone that is co-infected with hep c to look into treatment with these new drugs.  They are ribarvarin and interferon-free.

Betty, so sorry you are going through this.  Geez, I had a fractured femur from a car accident that the hospital misdiagnosed and I ended up falling at home snapping my leg in half.  I had to undergo surgery, a DePuy titanium rod inserted into my femur and four screws in my knee, various plates.  I have never been the same since.  That was in 2009.  I am on Truvada for the longest time.  I hope that I can be taken off the truvada and have it replaced with the new formulation that is going to be available. soon.  The new formulation will not be has hard on bone mineral density and kidneys.  

Which brings a whole new topic on aging on these strong hiv medications.  No one knows what is going to happen to all of us on these strong meds for long periods of years.  We are the guinea pigs!


Being on meds prior to 1996,

bjtacy's picture

Being on meds prior to 1996, which is when the life saving protease inhibitors came out really did some damage and also put us through things others who went on meds after this time won't have to ever go through, thank goodness.

But you are right, Valerie, even with the new meds, we are the guinea pigs.  The researchers, doctors, etc., don't know the long term effects of all these newer meds.  I know I've gotten plenty from the meds thus far, plus having HIV, diagnosed since 1991, though my first husband died in 1989.

Women need each other, especially those of us who are aging with long term HIV.  Valerie, I am so happy to hear about you clearing hep C!  That's huge. I have a friend in Chicago who just cleared it with the newer meds, and so far he's been okay.   I hope to hear more from others! And you all who have responded!

Do you get our newsletter?

admin's picture

Sign up for our monthly Newsletter and get the latest info in you in box.

seventh name
Sat, 1/31/2015 - 1:12pm
Sat, 1/31/2015 - 2:15am
Thu, 1/29/2015 - 2:33am

Learn about repairing the damage to the immune system caused by HIV, as well as about Immune Reconstitution Inflammation Syndrome (IRIS).

Learn about treatment of hepatitis C – who should get it and what is available – as well as HIV treatment for those infected with hepatitis C.

There are several different options for reducing the chances of passing on HIV while trying to get pregnant. If you are an HIV+ single woman or an HIV+ woman in a same-sex relationship seeking information on getting pregnant, the options below will help you understand what might be the best for you, and to prepare for discussions with your health care provider.

admin's picture

Join our community

Connect to our support community and share experiences with other women living with HIV.

Join now >

admin's picture

You Can Help!

Together, we can change the course of the HIV epidemic…one woman at a time!

Please donate now!>