Isolated and Lonley

This is so hard to do but im here and need some support.I found out 2019 that i was Hiv+.I was in denial like hell like no u sure check it again.I was so numb and automatically thought i was gonna die,i didnt have the proper knowledge 100%about hiv.When i found out i didnt even go on meds because of the denial for 3 months and being embarrassed to even tell anyone.I started to get night sweats,a rash on arms and legs always tired my body was starting to break down.I finally went to my local health department and got retested again for everything ,wishing like hell it was a mistake but it wasnt.

I talk to a female case worker after test came back, at health department and cried like a baby.I did not feel any sence of relief after talking to her because, she wasn't going threw this .my caseworker worker recommended a doctor who sees patients for everything so nobody knows why u are there,that was a relief at least.My caseworker accompanied me to my first appointment i need that support.To my surprise my doctor has the Aids virus for over 20 years so it was easier to talk with him ,cause he was just like me in a way. After test that day 3 weeks later when i went for a check up my cd4 was 588 and VL was 1339 and that was before i even took meds. i just stared meds in dec of 2019 im on biktary and there are some good days and some bad days.I have taken this so hard i had to take short term leave from work because the meds had me nauseous and sleepy ,bad pain like sharp cramps ,my bowels were off the chain.Ive isolated my self in the house i barely leave my house ive cut everyone off change my number ive been in a dark lonley place .I dont even feel like me anymore i wont even entertain a friendly conversation with a man period .I dont want to feel like this i feel unworthy , unwanted ,depressed not interested in anything anymore .I have nobody to talk to about this because of fear of being judged,i haven't been sexually active since i found out and dont even have the desire to.I dont want to feel lonley anymore or depressed im in such a bad dark place in my life .I hate that somedays my meds make me feel like shi* ,i hate i trusted someone so much that i knew, and thought he had my best interest at heart but obviously not.I thought we were for each other only but come to find out he was for everybody ,now im stuck with that shi* forever.I know i have to take my meds everyday to stay healthy but what about my mental state of mind it sucks so bad.I feel like ill be Lonley dealing with this alone ,cause im scared nobody will want me because there lack of education on hiv .I just really some support before i go crazy not letting my emotions and feelings out about this hiv mess .

Sincerely,
Lonley outcast

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Comments

2 comments

Submitted by tj30trust
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Hello lonely and isolated. Just know that you don't have to feel that way anymore. I know it seems hard to comprehend that but just as you described, I went through some months after diagnosis that I am living with HIV before I got on medication. It seriously is not the end of the world though.

As far as dating goes, you would be surprised how much those of us who are publicly living with HIV have had an influence on the community. I often reject dates because I'm busy, not because there is no opportunity to do so. Believe me when I tell you that you are not alone.

My name is Tiommi and I am an administrator on the PWNCares Sister Circle PRIVATE Facebook group found here: https://www.facebook.com/groups/pwncares.sister.circle/. When asked who referred you, type in Tiommi Luckett. You can also find on the Positive Women's Network - USA website our video series where we are having these kinds of conversations. Click here: https://www.pwn-usa.org/pwncares/. We talk about healthy relationships, dating, the importance of good mental health, motherhood, undetectable equals untransmittable.

That last part is important to know, just for your own mental well being. You are NOT dirty! You are NOT being punished! YOU ARE DESERVING OF LOVE, RESPECT AND INTIMACY! Please

Submitted by MariaHIVMejia
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Hello sister ! My name is Maria Mejía and i am a 31 year long term survivor or HIV and AIDS ! You are in the right place and this will be your support and sisterhood . I also invite you to add me on Facebook Maria HIV Mejia and do know that it gets better ... you have options of medications and social media and wonderful sites like this <3 take it one day at a time and don’t isolate ! I didn’t have any medication or knew anyone that was living with HIV back In the day . The medication that arrived in the beginning was so horribly toxic that people felt like death and it was horrible times ... now you have us and good medication that will help keep the Coria suppressed ! You have higher tcells “ immune system “ than I do and your viral load will be undetectable in no time ! You can love , live , survive and thrive with this human condition ... this is not une end . Love and much light to you

María

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