Lifetime Survivors of HIV

There are many thousands of adults living with HIV today who acquired HIV at birth or as young children. They are lifetime survivors of HIV (also known as Dandelions) – with issues that are similar to older long-term survivors who have lived with HIV since its earliest days, as well as their own unique concerns.

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Women living with HIV who acquired the virus early in life may have health challenges similar to older adults – as well as their own unique concerns.

There are still many adults living with HIV today who acquired the virus early in life. Learn more about the challenges and strengths of female lifetime survivors of HIV.

At the US Conference on HIV/AIDS, a group of lifetime survivors of HIV took the stage to demand attention for their needs. Grissel Granados, The Well Project's deputy director, wrote about the moment's importance for TheBody.com.

In this profound journey through the shadows, I've witnessed the evolution of our complex relationship with HIV and our quest for healing – my mother's and mine.

Watch a very special episode of A Girl Like Me LIVE – three lifetime survivors of HIV discuss the importance of identity, language, their growing movement, and more.

My decision to openly share my HIV status at the age of 23 was not about seeking attention but about filling a critical gap in the conversation.

Managing HIV as children and into adulthood is an experience and a bond that is difficult to describe.

Last year at USCHA I stood in a room and said We are not long-term survivors, but we are LIFETIME SURVIVORS .

Let me tell you how my HIV diagnosis led to me at New York Fashion Week. I attended my routine check-up as usual. I was triaged and after being placed in the exam room, my doctor asked to speak with my mother alone in another room. My mother returned to the room in tears and I could not figure out...

I would like to be a part of A Girl Like Me to show the positive side of living with HIV. I would like to be the face of inspiration to help those who struggle with stigma daily.

Nina Martinez, running-to-40, has been living with HIV since she was six weeks old. After pursuing graduate studies in epidemiology at Emory University, she served as a public health analyst at the Centers for Disease Control and Prevention.

Ashley Nicole Richardson is a young African American Woman with an ambition like none other. Ashley has always had a passion for helping those in her community.

USCHA 2022 convened in San Juan, Puerto Rico, October 8 – 11, 2022. Members of The Well Project's community wrote recap articles sharing their unique perspectives on conference sessions and events of interest to our communities.

Hearts and Minds of The Well Project is a storytelling project that shines a spotlight on some of the extraordinary individuals who have been instrumental over the past 20 years in making The Well Project the organization it is today.

Learn from advocates about how they have initiated conversations about HIV prevention and awareness with youth in their communities, tips for when to begin talking with children, and more.

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