Never Settle!

Hi all, as an aging member of our community I have seen and dealt with a lot of issues.

Yesterday during a group conference call regarding health and aging with HIV, I learned that a drug I took for my HIV back 20 years ago was the probable cause for my bout with Dementia.

While I understand that the drug manufacturers are pushing these drugs out with FDA clinical trials that don't run for many years, and I am grateful for drugs that have kept me alive, it's not the whole picture. My quality of life is.

I am angry and sad that when they discovered this drug causes side effects that damaged my brain they didn't reach out to me or my provider and do the right thing. I am now, 20 years after the dementia started and 10 years after they supposedly discovered this major side effect, just hearing about it from a study nurse. I lost several years of life due to this drug...

To read this blog in its entirety, click here.

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Marig2016 commented on When It Clicks

Thu, 11/25/2021 - 10:58pm
Thu, 11/25/2021 - 12:31pm

Get basic information about a variety of approaches to treating the metabolic changes that may result from living with HIV or taking HIV drugs.

Lipodystrophy means abnormal fat changes. This article addresses treatments for fat loss, or lipoatrophy.

Get basic information about lipodystrophy: body shape changes, metabolic complications, and causes and treatment of fat loss and fat gain.


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