Hi all, as an aging member of our community I have seen and dealt with a lot of issues.
Yesterday during a group conference call regarding health and aging with HIV, I learned that a drug I took for my HIV back 20 years ago was the probable cause for my bout with Dementia.
While I understand that the drug manufacturers are pushing these drugs out with FDA clinical trials that don't run for many years, and I am grateful for drugs that have kept me alive, it's not the whole picture. My quality of life is.
I am angry and sad that when they discovered this drug causes side effects that damaged my brain they didn't reach out to me or my provider and do the right thing. I am now, 20 years after the dementia started and 10 years after they supposedly discovered this major side effect, just hearing about it from a study nurse. I lost several years of life due to this drug...
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