The Well Project is pleased to support a letter sent to the National Institutes of Health (NIH) on September 10, 2025 urging them to preserve the federal HIV treatment, care, and prevention guidelines, alongside more than 30 organizations that represent individuals who interact with and are affected by the guidelines (see list below). The joint letter encourages the NIH to maintain federal HIV guidelines and requests the opportunity to participate in a meeting to discuss potential strategies and opportunities to support their maintenance.
The letter describes the value of the HIV guidelines and why NIH should continue to maintain them: "The availability, accessibility and timeliness of the HIV guidelines have saved countless lives, and decades later their utilization continues to increase because of the expertise and credibility that NIH brings to guideline development on complex HIV treatment and clinical issues. The rigorous process also advances NIH's priorities by identifying critical research gaps that inform NIH's research agenda and priority areas for implementation science. We understand that NIH's proposal to transition away from maintaining the federal HIV guidelines is driven primarily by fiscal constraints. Given that there is not another federal agency with the expertise to maintain the guidelines, this short-term cost-saving measure could come at a high cost in the long term, if people living with HIV experience poorer health outcomes, which also will lead to more costly and intensive care and an increase in HIV transmissions."
Under the leadership of the HIV Medicine Association (HIVMA), The Well Project is especially honored to have been part of the group co-authoring the letter, in partnership with The Reunion Project.
Endorsing organizations:
AIDS United
American Academy of HIV Medicine
American Academy of Pediatrics
American College of Obstetricians and Gynecologists
Association of Departments of Family Medicine
Association of Nurses in AIDS Care
AVAC
Dandelions Inc.
Family Medicine Residency Directors
HIV Medicine Association
HIV+Hepatitis Policy Institute
Infectious Diseases Society of America
International Association of Physicians in AIDS Care
International Community of Women Living With HIV North America
NASTAD
North American Primary Care Research Group
PAC
Pediatric Infectious Diseases Society
Positive Women's Network - USA
Positively Trans
Ribbon – A Center of Excellence
San Francisco AIDS Foundation
SERO
SisterLove
Society for Maternal-Fetal Medicine
Society for Teachers in Family Medicine
Southern AIDS Coalition
The Reunion Project
The Well Project
Transgender Law Center
Treatment Action Group
Please access the letter on the HIVMA website.
