WRI 2016 focused on women across the entire spectrum of HIV cure research, from clinical trial research participation and conduct, to ethics and stakeholder engagement, to advocacy, policy and funding around HIV cure. Cure research has garnered much excitement in the HIV community over the past several years, but women remain underrepresented across the continuum of HIV cure research. This has resulted in a lack of information about how interventions may have different effects in women than in men.
WRI 2016 featured presentations by experts highlighting the most recent evidence on women in cure research and examining successful strategies to increase women’s participation across the board. The meeting also focused on how the WRI can advance women in HIV cure research moving forward. We addressed the ways in which the WRI may work to disseminate information, encourage clinical trial participation (through interventions targeting both potential clinical trial participants and researchers), encourage inclusion of sessions examining sex differences in cure research at scientific meetings, and other policy and advocacy-related efforts.
Meeting participants were asked to address a number of critical questions throughout the course of the meeting:
- What is the value in having women represented in HIV cure research and what do we stand to learn from their participation?
- How can an understanding of sex differences in HIV cure research be informative toward finding a cure?
- What concerns about cure research exist among women and other potential clinical trial participants? How are/can they be addressed?
- What challenges exist in recruiting women to participate in cure research?
- What interventions have been successful in encouraging women’s participation in clinical trials and how can those interventions be leveraged for use in cure research?
- Why are women researchers underrepresented in HIV cure research? What strategies might be used to increase those numbers?
- Is there value/importance in increasing the number of female researchers?
- What are the ethical issues attendant in HIV cure research? What strategies have successfully addressed those issues?
- What specific research gaps need to be addressed in order to maximize the success of HIV cure research?
- What can we, as the WRI, do to encourage all relevant stakeholders to be interested in and get involved in HIV cure research?
- What can each of us personally do in our work environment to advance the ideas generated at this WRI meeting?
2016 WRI meeting participants
Drexel University College of Medicine
UNC School of Medicine
U.S. Military HIV Research Program
Centers for Disease Control
|Nanci M. Archin
UNC Cure Center
|Judith D. Auerbach*
University of California, San Francisco
Medical University of South Carolina College of Nursing
The Well Project
Institute of Women & Ethnic Studies
|Elizabeth Connick, MD
University of Colorado Denver
O'Neill Institute/Georgetown Law
UNC at Chapel Hill
DC Department of Healthcare Finance
Kaiser Family Foundation
Positive Women's Network - USA
Merck & Co., Inc.
Women's HIV Program at UCSF
The Well Project
Forum for Collaborative HIV Research
Johns Hopkins University
|Linda H. Scruggs
Ribbon Consulting Group
Johns Hopkins University School of Medicine
HIV Medicine Association
Geisel School of Medicine at Dartmouth
UPR School of Medicine
*2016 advisory board member