WRI 2022 - Advancing Meaningful Inclusion of All Women in HIV Research and Clinical Trials

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The Women's Research Initiative on HIV/AIDS (WRI), a program of The Well Project, convened Advancing Meaningful Inclusion of All Women in HIV Research and Clinical Trials on May 12-15, 2022. The meeting sought to address the ways that women are systematically excluded from or under-represented in HIV research and clinical trials and identify solutions to address the underlying issues that perpetuate these inequities. Please click here or below to view the Issue Brief.

 

Highlights from the meeting include:

  • Historically, women have been insufficiently included and involved in HIV research, reflecting a form of paternalism that has sought to “protect” women, particularly those with child-bearing capacity, from potential harms from research. Such exclusion has resulted in limited knowledge about important aspects of women’s experiences of HIV that would inform their active participation in decision-making about their health and well-being.
  • Specific populations of women (including women of trans experience, women who use drugs, and women who sell sex, among others) have been particularly marginalized and excluded from HIV research.
  • Deficits in HIV research among women impair the overall HIV response; in order to successfully end the HIV epidemic, relevant experiences and circumstances of all affected populations must be understood.
  • In many cases, the tools to address these challenges already exist; it is now imperative that necessary changes are implemented by policymakers, researchers, funders, industry, and other stakeholders to ensure the meaningful inclusion and engagement of all women in HIV research. Community engagement will play a fundamental role in these efforts.

Collage of images from WRI 2022.

Ensuring truly meaningful and equitable engagement of all relevant populations of women in HIV research​,​ and including attention to the biomedical, behavioral, and social aspects of HIV specific to women’s lives​,​ ​are​ vital to end​ing​ the HIV epidemic. While there have been significant strides made over the last four decades, there is still considerable work to be done. Success in this work requires concerted partnerships among all HIV research stakeholders that center the lives and experiences of diverse ​populations of ​women.

To learn more, please see the WRI 2022 Issue Brief: Advancing the Meaningful Inclusion of All Women in HIV Research.

WRI 2022 participants.

WRI 2022 Meeting Participants

Adaora Adimora, MD, MPH*
University of North Carolina School of Medicine
Nancie Archin, PhD
University of North Carolina
Maryana Arsanious, PharmD
Janssen
Judith D. Auerbach, PhD*
University of California San Francisco
Dawn Averitt*
The Well Project and WRI
Richard Averitt
Starchive.io
Gina Brown, MD
Gilead Sciences
Danielle Campbell, MPH
Community
Vignetta Charles, PhD
ETR
Cecilia Chung
Transgender Law Center
Jenna Conley*
The Well Project
Elizabeth Connick, MD
University of Arizona
Ciarra Covin
The Well Project
Judith Currier, MD, MSc
University of California at Los Angeles
Antigone Dempsey, MEd
HRSA HIV/AIDS Bureau
Dazon Dixon Diallo, DHL, MPH
SisterLove
Karine Dube, DrPh
University of North Carolina Gillings School of Global Public Health
Olivia Ford
The Well Project
Maureen Goodenow, PhD
Office of AIDS Research
Grissel Granados, MSW
The Well Project
Rowena Johnston, PhD
amfAR
Jennifer Kates, PhD*
Kaiser Family Foundation
Aryah Lester
Transgender Strategy Center
Judith Levison, MD, MPH
Baylor College
Kathleen MacQueen, PhD, MPH
FHI 360
Krista Martel*
The Well Project
Amaya Perez-Brumer, PhD
University of Toronto
Bridgette Picou, LVN
The Well Project
Tonia Poteat, PhD, MPH, PA-C
University of North Carolina
Linda Scruggs, MHS, LPC*
Ribbon
Eileen Scully, MD, PhD
Johns Hopkins University
Susan Sherman, PhD, MPH
Johns Hopkins Bloomberg School of Public Health
Vani Vannappagari, MBBS, MPH, PhD
ViiV Healthcare
Fulvia Veronese, PhD*
NIAID, NIH (retired)
Charles Wira, BS, MS, PhD
Geisel School of Medicine at Dartmouth
Carmen Zorilla
UPR School of Medicine

 

*2022 WRI Advisory Board Member

The WRI 2022 convening received sponsorship support or grants from Gilead, Janssen, Merck, and ViiV Healthcare.

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