Preparing for Birth and Beyond: Postpartum Checklists for Parents Living with HIV

Submitted on Sep 3, 1923

Congratulations on your little one(s)! Getting used to a new baby and the changes they bring to your life, your relationships, and potentially your health can be a beautiful time, and an overwhelming one. The postpartum period (sometimes known as the "fourth trimester" because if its importance in the development of new babies and parents) is usually considered the first three months after giving birth. In reality, that period of adjustment can last up to a year – which is the time frame The Well Project considers in bringing you this resource.

About This Resource

We hope these checklists and questions can support you, your baby, and those close to you in having the smoothest possible start to your journey together. Some of these are listed by the point in your birth journey at which they will come into play, but it is a good idea to start thinking about these things before you give birth! Some of these are listed by which type of provider to speak to, but you may find that another person in your care team, or your life in general, is a better fit to have these conversations. This checklist can serve as a reminder to reach out for the support you need – wherever it may come from.

 

Understanding how your body works to move your baby out into the world can help the birthing process feel more manageable – and even empowering. The questions and resources below can help guide conversations with your provider.

☐  What happens to people's bodies during labor and birth? 

More about this:

Preparing for Labor and Delivery (video from "Overdue," a doula-guided pregnancy and postpartum resource for Black moms-to-be, by mater mea)

The Essence of Coping in Labor (from PSfromPenny - a collection of practical, empowering videos from renowned birth professional and childbirth educator Penny Simkin)

Evidence-Based Birth (collection of video courses, blogs, and other birth preparation resources)

☐  How does my baby stay HIV-negative during birth?

More about this:

Pregnancy, Birth, and HIV (fact sheet from The Well Project)

Pregnancy and HIV: A Girl Like Me LIVE (livestreamed video chat from The Well Project)

☐  Who do I want with me during labor and birth?

  • Are there limitations to how many people can be in the room where I am giving birth?
  • Is there information (including but not limited to my HIV status) that may be shared in my hospital room that I am not comfortable with some people knowing?
  • Which people (partner, mom, auntie, friend, doula) will help me feel most safe, supported, and powerful?

Who Should Be on Your Birth Team? (video from "Overdue," a doula-guided pregnancy and postpartum resource for Black moms-to-be, by mater mea)

☐  What is a doula? Is it a good idea for me to have one?

More about this:

Birth and Postpartum Support and HIV (video expert conversation from The Well Project, featuring The Afiya Center)

How Doulas Help People With HIV Navigate Pregnancy and Beyond (article from TheBody)

☐  What are my birth preferences/birth plan?

More about this:

Sample Birth Plan Template (resource from ACOG - The American College of Obstetricians and Gynecologists)

Beyond Delivery: How a Birth Plan Can Prepare You for All Four Trimesters (audio and transcript from Life Kit, a National Public Radio podcast)

Birth Plans for Black Moms (video from "Overdue," a doula-guided pregnancy and postpartum resource for Black moms-to-be, by mater mea)

☐  How do I want to feed my baby?

More about this:

Overview of Infant Feeding Options for Parents Living with HIV (fact sheet from The Well Project)

Resources to Talk to Your Provider about Breastfeeding and HIV (discussion guide from The Well Project)

Breastfeeding, Chestfeeding and HIV: Supporting Informed Choices (resource collection from The Well Project)

A solid network of supportive people can work wonders for your healing after birth and adjustment to life with your baby. Think about which family members, friends, neighbors, peers, and others you might be able to lean on and ask for different kinds of help – whether in person, on the phone, or virtual.

Considerations for your network may include:

  • Who lives nearby and likes to cook?
  • Who can drive and is available at odd hours?
  • Who has said they want to help out?
    • Are they someone you feel good being around?
    • Are they someone you may want some boundaries with? If so, can they have a role other than coming into your house?

You deserve to have all the care and support you need!

☐  Comforting items to have at home 

More about this:

37 Postpartum Essentials for Every New and Expecting Family (resource from The Mother Baby Center)

☐  Forming a support "circle" – who can I rely on to support me with: 

  • Bringing or making nourishing food
  • Being a good listener when I need it
  • Holding baby when I need a break
  • Helping with chores around the house
  • Helping me stay consistent with taking my medications and giving baby medications
  • Their own wisdom about birth/babies
  • Rides to appointments
  • Finding or providing child care
  • HIV-knowledgeable infant-feeding support

More about this:

5 Reasons Why You Need a Postpartum Support Network (article from ACOG - The American College of Obstetricians and Gynecologists)

☐  Can I connect with other new parents living with HIV (and those who care for them)? 

☐  What if I need to switch providers? 

More about this:

How to Fire Your Doctor (article from TheBody)

9 Steps for a Smooth Switch to a New HIV Provider Without Treatment Interruptions (slide show from TheBody)

Pregnancy and birth can have an impact on your physical, emotional, and sexual health. The provider who delivered your baby will check how your body is healing, but other care providers may also be important as you recover and adjust to new changes in your body and your life. These questions can help you focus on how different providers can best support your and your family's health.

These lists of (self-reported) HIV-affirming and knowledgeable providers, developed by The Well Project, may offer good places to start for referrals in your area:

List of US-Based Providers who Support Informed Infant Feeding Choices for Parents with HIV

List of HIV-Friendly Reproductive Services and Providers in the US

My OB/GYN or Midwife

☐  Are they familiar with the latest HIV care and treatment guidelines for pregnant people, including support for infant-feeding decision-making?

More about this:

Recommendations for the Use of Antiretroviral Drugs During Pregnancy and Interventions to Reduce Perinatal HIV Transmission in the United States (expert panel guidance, published and updated by the US Department of Health and Human Services as of June 2025)

☐  Do they know about the National Perinatal HIV Hotline (1-888-448-8765)?

  • A federally funded service that provides free clinical consultation on difficult cases to providers who are providing HIV care during pregnancy and for newborns after pregnancy

☐  Can they help connect me with a postpartum doula or community health worker?

☐  I would like to know my appointment schedule in advance

☐  I would like help connecting (or reconnecting) with a primary care provider

☐  I would like to stay connected with sexual and reproductive healthcare to discuss:

  • Experiencing sex, intimacy, and pleasure after giving birth
  • Prevention for my partner(s)
  • Preventing other STIs for me
  • Future family building or contraception

My HIV Care Provider

☐  I think that coordinating my care with a case manager would be helpful

☐  I need support with taking my HIV and other medications during this stressful time

☐  I am sad, depressed, anxious, or just not feeling like myself.

  • I would like help connecting with an HIV-knowledgeable mental health provider

More about this:

Mental and Behavioral Health, Women, and HIV (fact sheet from The Well Project)

ACOG Explains: Mental Health and Pregnancy (video from ACOG - The American College of Obstetricians and Gynecologists)

If you have thoughts of ending your life, help is available! Call 988, the Crisis Lifeline, for emotional support.

Baby's Pediatrician

☐  Do they know about the National Perinatal HIV Hotline (1-888-448-8765)?

  • Consultants can provide referrals to local or regional pediatric HIV specialists

☐  What is my baby's appointment schedule?

More about this:

AAP Schedule of Well-Child Care Visits (general guidance from HealthyChildren.org, provided by AAP – the American Academy of Pediatrics)

☐  Is there anything I need to be concerned about when it comes to developmental milestones?

☐  I would like to learn techniques to help me give my baby their medications

My Primary Care Provider

Ask yourself:

☐  How am I feeling? Are there any changes in my body that I am concerned about?

Ask your provider:

☐  Have there been any changes in my lab results outside of HIV? What do they mean?

☐  Is there anything I need to be thinking about as far as whole-body health during a stressful year?

☐  I want to talk about my lifetime chance of chronic health conditions

☐  Am I due for any health screenings (bone health, diabetes, etc)?

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