By Robin Barkins
The US HIV Cure Research Academy took place April 22 – 24, 2026, in Durham, North Carolina. This year's academy welcomed more than 30 talented participants working in the HIV field and interested in building knowledge of HIV cure science and skills in translation. The selected fellows had a unique opportunity to interact with leading researchers and advocates over 2.5 days of intensive training, networking opportunities, and hands-on experience. Read on for perspectives on the meeting from one of the two members of The Well Project's community advisory board that attended as fellows.
I recently had the opportunity to attend the US Cure Academy held in Durham, and what a journey it turned out to be personally, emotionally, and professionally.
To be honest, getting there felt like a challenge from the very beginning.
On the first day, I missed my flight not once, but twice. At that moment, I started wondering if it was a sign that maybe I was not supposed to go. Instead of stressing, I decided to make the best of the situation. While waiting for my flight the next morning, I treated myself to getting my hair and nails done. I even decided to put on eyelashes, which unfortunately got wet while my hair was being washed. At that point, I laughed to myself and thought, "Okay, maybe this is another sign."
The next morning, I woke up late again and missed my flight for a third time (yes, I know, lol). Thankfully, I was able to catch the next flight out. While waiting to board, I stopped at Leah's and ordered shrimp and grits, home fries, eggs, and sausage because your girl was definitely hungry.
Finally, I boarded the plane. But just as I settled in, I received heartbreaking news that one of my favorite cousins had passed away.
In that moment, everything shifted emotionally. I started thinking about all the missed flights, the delays, and even taking the time to get myself together physically. I realized that maybe I needed those moments of self-care before receiving difficult news. Although I was grieving internally, I chose not to share my loss with anyone at the conference. Instead, I made the decision to fully embrace the experience, connect with new colleagues, and absorb as much knowledge as possible about the latest developments in HIV cure research.
One of the most inspiring moments of the academy was touring the research lab with Guido Ferrari, MD, and his team. Seeing the dedication, passion, and innovation happening inside the lab was incredible. What inspired me the most, however, was seeing younger generations actively involved in HIV cure research. Watching emerging scientists and researchers commit themselves to this work gave me hope for the future of HIV treatment and possible cures.
On the final day of the conference, participants were split into groups to work together on a case study. Our group presented the case of the "Esperanza patient," a woman considered to be an elite controller. An elite controller is someone who is able to maintain viral suppression for 12 months or longer without ongoing antiretroviral therapy.
In this case, the patient only required antiretroviral medication during pregnancy. After giving birth, she remained virally suppressed without continued HIV treatment. Researchers continue to study her case closely to better understand how long she can maintain viral control as she ages.
In my opinion, the Esperanza patient represents a groundbreaking discovery in HIV cure research. Cases like hers could potentially reshape how we understand long-term viral suppression, especially for newly diagnosed individuals who struggle with medication adherence. Her story offers hope, possibility, and a deeper understanding of what the future of HIV care could look like.
Attending the US Cure Academy reminded me that even through grief, setbacks, and uncertainty, purpose still finds a way to meet you where you are. I left the experience not only more informed, but even more passionate about advocacy, education, and the future of HIV cure research.
More from The Well Project on the 2nd US HIV Cure Research Academy
- Considerations of Sex and Gender: A Recap from the 2nd US HIV Cure Research Academy by Katie Willingham
- The Cure Research Academy by KatieAdsila on A Girl Like Me
- HIV Cure Academy - a poem by KatieAdsila on A Girl Like Me
- Learning from HIV Controllers: A Recap from the 2nd US HIV Cure Research Academy by Katie Willingham
- South African Child Virtually Cured of HIV: A Case Study from the 2nd US HIV Cure Research Academy by Katie Willingham
