What NOT to say: "Why are you in bed most of the time?" Or "Why are you sick most of the time?" "Push Yourself." "It happens and it is normal." "You are so lazy." (The last two are "common" statements amongst women.)
These are the questions that have always been fired at me - which have often been the cause of relationship disaster. But wait, "most" of the time?? I, for one, hate sedentary lifestyle. I, for one, would love to go out, love to help around the house or outside, love to travel. One thing many forget that being a #PersonLivingWithHIV, I also suffer from #ChronicFatigueSyndrome. This goes hand-in-hand as one ages. It is also because of being a #LongTermSurvivor (14 years and still going strong). Hence people like us have learnt to put #SelfLove as a PRIORITY - to love, to understand, to care and respect our body first.
And no, we don’t hop up on the bed just like that. There are times when our schedules are very demanding that it totally exhausts us to the core. "So what," you may ask. "It happens to us also"... Well, here lies a difference when it comes to the level of fatigue between a healthy person and a person with #ChronicIllness - when I overdo things, it takes me a minimum 3 to maximum 5 days to recover.
So what is the solution?
Whatever the day/week schedule or deadlines are, I need to know in advance so as to plan accordingly. I carefully plan every activity of my day so that it goes smoothly and I save my energy. Keeping me or any person with chronic/terminal illness in the dark or telling me in the last moment is a strict no-no.
I will tell you the best example:
In June 2018, some of the riders planned to go to Nagpur-Leh/Ladakh-Nagpur on a bike and I was one of them. We rode 6000 kms in extreme conditions and covered it in 18 days. Throughout the journey, I made best use of pit-stops by resting - not in the hotel but on the road itself. Or on the khatiya of the dhabas. Or on the raised platforms of petrol stations. (We call it "Biker's life"). Whenever they stopped, I took a quick catnap. This is how I utilised my energy.
But after reaching home, I was totally exhausted (from being strong for too long, both mentally and physically) and I had to crash on the bed. My recovery took a week but it was the best adventure of my lifetime.
Should I do such adventure again?? Hell yessssss!!!
By the weay, meet Goldfish (teddy), my huggable companion. Now don’t ask why I named him thus, he is no fish, yeah.... even I don't know why I named him this way, but it stuck.