For Healthcare Providers: Building Equity, Ethics, and Education on Breastfeeding and HIV

Submitted on Apr 1, 2024
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BEEEBAH logo.

Table of contents

About BEEEBAH

Building Equity, Ethics, and Education on Breastfeeding and HIV (BEEEBAH) is a comprehensive, multi-tiered project expanding upon The Well Project's efforts to increase knowledge and access to information around breast/chestfeeding* and HIV.

View a compilation of all The Well Project's work on breast/chestfeeding and HIV since 2018

If you are interested in being in conversation with colleagues on this topic and receiving updates from the field, please email The Well Project's editorial director, Olivia Ford, to be added to the HIV and Infant feeding listserv.

Supportive Provider Listings

Please allow several weeks for these pages to be updated with the information you submit. Please be aware that these listings are self-reported, and that The Well Project is unable to review each entry for accuracy.

List of US-Based Providers who Support Informed Infant Feeding Choices for Parents with HIV

The Well Project maintains a list, by specialty, of health and service providers (based primarily in the US) who already consider themselves to be knowledgeable and affirming regarding the information, support, and tools necessary to help parents living with HIV make informed infant-feeding decisions. If this description fits your practice and you would like your name, organization, or clinic to be added to this resource list, please carefully fill out the form at this link to "Add Your Information to The Well Project's List of Resources and Providers who Support Informed Breast/Chestfeeding Decision-Making for Parents Living with HIV."

List of HIV-Friendly Reproductive Services and Providers in the US

If you are an HIV-friendly provider of broader reproductive healthcare or services and would like your name, organization, or clinic to be added to a resource list for community members searching for such a provider, please carefully fill out the form at this link to "Add Your Information to The Well Project's List of HIV-Friendly Reproductive Services and Providers in the US."

Provider Education Sessions

Perinatal HIV Roundtables

The HIV and Infant Feeding Guidelines at Six Months: Perspectives from National Leaders (2023)

For the second year in a row, The Well Project and the National Clinician Consultation Center (home of the National Perinatal HIV Hotline) co-hosted this event featuring panelists from the Health Resources and Services Administration, the American Academy of HIV Medicine, the American Academy of Pediatrics, and more. Panelists discussed how these organizations plan to adjust to, address, and implement the new HIV and infant feeding guidance.

Updates in Breast/Chestfeeding: Parent Perspectives and Evolving Practice (2022)

Co-presented with The Well Project, this panel discussion featured physicians and a legal professional engaged with supporting parents living with HIV in their infant-feeding journeys, in paired conversation with Black women advocates living with HIV who have navigated those journeys.

Research Posters and Conference Presentations

Listening to Women: Supporting Informed Decision-Making on Infant Feeding and HIV

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Poster for Listening to Women: Supporting Informed Decision-Making on Infant Feeding and HIV.

The Well Project program manager Ciarra Covin was presenting author for this poster at the International Workshop on HIV & Women 2023 in Seattle, Washington, February 17-18, 2023. This collaborative poster presented data from The Well Project's 2021 survey of US women living with HIV responding to questions about infant feeding, alongside qualitative results from Nourish-UK's similarly sized sample of women living with HIV in the UK who were interviewed about how they chose to feed their babies.

 

Breastfeeding & HIV in the US and Canada: Centering Women's Lived Experiences Into the Clinical, Research and Policy Discussion

The Well Project's executive director, Krista Martel, delivered this virtual conference presentation at the International Workshop on HIV & Women in 2021.

Breastfeeding and HIV in the U=U Era: Advancing Conversation and Community Awareness

This webinar, in partnership with the Sero Project, reprised the popular session of the same name from June 2021's virtual HIV is Not a Crime (HINAC) National Training Academy. Panelists from The Well Project, the International Community of Women Living with HIV – North America, and The Center for HIV Law and Policy discussed the intersections of HIV, infant feeding, and state intervention.

Expert Conversations

Leadership Exchange LIVE: BEEEBAH Edition

A streaming video series featuring live, interactive conversations between thoughtleaders on infant feeding and HIV exploring one another's work, activism, and personal experiences. Hosted by Ciarra "Ci Ci" Covin – The Well Project's program manager, an internationally recognized advocate on this topic, and a past breastfeeding parent living with HIV.

Updates to the Perinatal HIV Clinical Guidelines!

Featuring: Lealah Pollock, MD, MS (University of California, San Francisco)
Watch this powerful discussion of recent updates to the Perinatal HIV Clinical Guidelines, between a member of the clinical guidelines panel and an advocate who advised the panel during the update process.

Breastfeeding, HIV, and Criminalization: Legal Considerations from a US Attorney

Featuring: Catherine Hanssens (The Center for HIV Law and Policy)
Hear insights from an attorney who has been active on HIV legal and policy issues since 1984.

 

 

The Big Picture: Health Implications and Bioethical Considerations of Breastfeeding and HIV

Featuring: Marielle Gross, MD, MBE (University of Pittsburgh/Johns Hopkins)
Covin and Gross have shared a stage to talk about breast/chestfeeding and HIV before; the two reconnected to discuss race, maternal health, and ethics around infant feeding and HIV.

 

Breastfeeding and HIV: Viewpoints from an Adult and Pediatric Provider

Featuring: Allison Agwu, MD, ScM (Johns Hopkins)
Covin related her personal experiences as a woman living with HIV, new parent, and advocate; Agwu shared insights from her work caring for women living with HIV across the lifespan (from pediatrics to adults), including women who choose to breastfeed.

Other Videos and Podcasts

It's Time to Embrace Breastfeeding/Chestfeeding for US People With HIV

On this episode of The Future of HIV Care, a monthly podcast from TheBodyPro, physician Lealah Pollock, MD, and advocate Ciarra "Ci Ci" Covin explain how recent changes to US perinatal HIV guidelines reveal an important shift in how we fundamentally approach the clinician-patient relationship with pregnant and infant-feeding people who are living with HIV.

HIV and Infant Feeding Listserv

We invite group members to post resources, updates, and questions related to HIV and infant feeding, including breast/chestfeeding. To join, please email The Well Project's editorial director, Olivia Ford.

News and Articles

The Well Project Applauds Updates to Perinatal HIV Clinical Guidelines around Breast/Chestfeeding for Women and Other Birthing Parents Living with HIV

As a result of years of advocacy by women living with HIV, providers, and others – including The Well Project – updates to the US Perinatal HIV Clinical Guidelines on January 31, 2023, assert the need for increased support from providers for parents' infant-feeding choices. The guideline updates state the likelihood of transmission if the birthing parent has an undetectable viral load and is taking HIV drugs (less than 1 percent); provide more detailed information on the potential benefits of breast/chestfeeding; and offer guidance for providers counseling birthing parents around their infant-feeding options.

Printed Material for Clients

"Get the Facts on Breast/Chestfeeding and HIV" Pamphlet

Get key facts about breast/chestfeeding and HIV at your fingertips! From snapshots of the latest research and current guidelines to a direct link for support in talking with providers about infant feeding, this pocket-sized folding pamphlet packs vital information into an attractive, readable format. The pamphlet is a helpful resource to share at conferences and community events, in clinic waiting rooms – anywhere women and other potential parents living with HIV are served.

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BEEEBAH pamphlet.

 

Click the image above to save as a jpeg or share online; or download a printable pdf of this resource

Fill out this form to have free copies of this pamphlet shipped to your organization or practice!

Folleto "Conozca los hecho sobre la lactancia materna/dar el pecho y el VIH"

Tenga al alcance de la mano los datos clave sobre la lactancia/dar el pecho y el VIH. Desde resúmenes de las últimas investigaciones y guías actuales hasta un enlace directo de apoyo para hablar con sus proveedores sobre la alimentación infantil, este folleto de tamaño bolsillo reúne información vital en un formato atractivo y legible. El folleto es un recurso útil para compartir en conferencias y eventos comunitarios, en las salas de espera de las clínicas y en cualquier lugar en el que se atienda a mujeres y otros posibles padres viviendo con VIH.

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BEEEBAH folleto.

 

Haga clic en la imagen de arriba para guardarla como jpeg o compartirla en línea; o descargue un pdf imprimible de este recurso

Llene este formulario para obtener copias gratuitas de este folleto enviadas a su organización o consultorio


*The language we use around this work includes both "breastfeeding" and "breast/chestfeeding." While our organization focuses on cis and trans women living with HIV, we strive to include trans men, nonbinary individuals, and others living with HIV who wish to explore feeding a child from their body. We acknowledge that there are multiple terms to describe this process.

BEEEBAH has received initial grant funding from ViiV Healthcare's Positive Action for Women initiative.

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Members of The Well Project community at USCHA 2022.

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